GENOMIC INFORMATION: ETHICAL IMPLICATIONS

June 9-12, 1996

University of Washington

Seattle, Washington

"Ethics and Science Need to Shake Hands" --Richard Clarke Cabot (1868-1938)

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Course Description, Faculty, Applicant Information, Accreditation, Disability Accommodations, Sponsors, Tentative Schedule, Application

Course Description

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THIS IS THE LAST TIME WE ARE PLANNING TO OFFER THIS COURSE.
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Directed to both genetic scientists and to bioethics scholars with a humanities background, the course is an intensive, advanced workshop emphasizing principles and methods of studying the ethical and social issues relevant to the Human Genome Program. Its specific objectives are:

  • 1) to introduce genetic scientists to methods and issues in bioethics relevant to the Genome Project, and to introduce humanities scholars to the scientific and clinical features of the Genome Project;

  • 2) to provide a forum in which scientists and scholars can begin to communicate about the ethical and social issues pertinent to the Human Genome Program;

  • 3) to describe and discuss certain major ethical, social, and legal implications of the Genome Project in terms of the actual and possible scientific capacities, and in terms of the analytic techniques of moral philosophy;

  • 4) to provide participants with scholarly methods and bibliographical techniques that will allow them to continue study of these issues as they return to their respective activities.

    These specific objectives are directed to the general objective of promoting discussion and analysis of the ethical and social implications of the Genome Project that is, on the one hand, informed by the nature, scope, and limits of genetic science, and on the other, by accurate and conceptually sound ethical analysis. This course is designed so that each lecture builds upon previous lectures. Therefore, attendance at all lectures is expected.

    Faculty

    ALBERT R. JONSEN, PH.D.
    Professor & Chairman
    Department of Medical History & Ethics

    ARNO G. MOTULSKY, M.D.
    Professor, Medicine & Genetics
    Division of Medical Genetics
    Department of Medicine

    WYLIE BURKE, M.D., PH.D.
    Associate Professor
    Department of Medicine

    Applicant Information

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    AGAIN, THIS IS THE LAST TIME WE ARE PLANNING TO OFFER THIS COURSE.
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    Participants will be selected to provide a balance of genetic scientists and bioethics/humanities scholars: fifteen (15) from each discipline. Applications must arrive by March 18, 1996. Acceptance notices will be mailed on April 1, 1996.

    The course will be held on the University of Washington campus in Seattle. Course fees are $125, and will include a catered reception. Fees from accepted participants are due April 22, 1996 --non-refundable on cancellations received after April 29, 1996. Participants are responsible for their transportation, housing and meals.

    The University of Washington is an equal opportunity, affirmative action institution. Minorities and women are especially encouraged to apply for this course. Two fee waivers are available for minority/women participants.

    Accreditation

    The University of Washington School of Medicine is accredited by the Accreditation Council for Continuing Medical Education to sponsor continuing medical education for physicians.

    The University of Washington School of Medicine designates this continuing medical education activity for up to 28 hours in Category 1 of the Physician's Recognition Award of the American Medical Association.

    Disability Accommodations

    To request disability accommodations, contact the Office of the ADA Coordinator, at least ten days in advance of the event. 543-6450 (voice); 543-6452 (TDD); 685-3885 (FAX); access@u.washington.edu (e-mail).

    Sponsors

    Genomic Information: Ethical Implications is sponsored by the Department of Medical History & Ethics, and the Division of Medical Genetics at the University of Washington School of Medicine. It is partially funded by the National Center for Human Genome Research, NIH.

    Tentative Schedule

    GENOMIC INFORMATION:  ETHICAL IMPLICATIONS  
June 9-12, 1996  
  
SUNDAY, JUNE 9TH  
     1:00 -    1:15 Introduction and Welcome       
        Albert R. Jonsen, Ph.D.  
     1:15 -    2:15 Mapping the Human Genome: What's the Project?   
        Arno G. Motulsky, M.D.  
     2:15 -    2:30 Break  
     2:30 -    3:30 ELSI:  What's the Problem?      
        Albert R. Jonsen, Ph.D.  
     3:30 -    3:45 Break  
     3:45 -    5:45 (A) Genetics for Humanists       
     Arno G. Motulsky, M.D.   
        (B) Ethics for Scientists       
     Albert R. Jonsen, Ph.D.  
  
MONDAY, JUNE 10TH  
     8:00 -    10:00     Eugenics:  Past, Present, Future       
        Keith R. Benson, Ph.D.  
     10:00 -   10:30     Break  
     10:30 -   12:30     Mapping & Sequencing Methods in Genome  
        Analysis    Arno G. Motulsky, M.D.  
     12:30 -   1:30 LUNCH  (ON YOUR OWN)  
     1:30 -    3:30 Genomics & Clinical Genetics       
        Wylie Burke, M.D., Ph.D.  
     3:30 -    4:00 Break  
     4:00 -    6:00 Thinking Through an Ethics-Genetics Problem       
        Albert R. Jonsen, Ph.D.  
     6:30 -    8:00 Reception (PROVIDED)  
     8:00 -    10:00     Genetic Therapy       
        Mark Kay, M.D.  
  
TUESDAY, JUNE 11TH  
     8:00 -    10:00     Scope of Genetic Medicine I: Monogenic &  
        Multifactorial    Arno G. Motulsky, MD  
     10:00 -   10:30     Break  
     10:30 -   11:30     Small Group Discussion  
     11:30 -   12:30     Plenary Discussion  
     12:30 -   1:30 LUNCH (ON YOUR OWN)  
     1:30 -    3:30 Predictive Medicine       
        Wylie Burke, M.D.  
     3:30 -    4:00 Break  
     4:00 -    5:00 Small Group Discussion  
     5:00 -    6:00 Plenary Discussion  
  
WEDNESDAY, JUNE 12TH  
     8:00 -    10:00     Scope of Genetic Medicine II: Behavioral Genetics      
        Arno G. Motulsky, M.D.  
     10:00 -   10:30     Break  
     10:30 -   12:30     Genetic Privacy       
        Albert R. Jonsen, Ph.D.  
     12:30 -   1:30 LUNCH (ON YOUR OWN)  
     1:30 -    2:30 Small Group Discussion  
     2:30 -    3:30 The Human Genome:  A Paradigm Shift in  
        Understanding Human Nature     Faculty

    Application

    Please consider me for participation in the course Genomic Information: Ethical Implications, JUNE 9-12, 1996, at the University of Washington, Seattle, Washington. 

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    Mail this application form together with a resume which includes education, employment/professional experience, and publications to:

    Marilyn J. Barnard, Program Coordinator
    Genomic Information: Ethical Implications
    Medical History & Ethics
    Box 357120
    University of Washington
    Seattle, WA 98195-7120

    APPLICATIONS MUST ARRIVE BY MARCH 18, 1996. Do not send any fees at this time. Notification of acceptance will be mailed on April 1, 1996, along with information regarding housing options.

    Questions regarding the course or the application/selection process should be directed to Marilyn J. Barnard, Medical History & Ethics, at (206) 616-1864; FAX: (206) 685-7515; or e-mail:

    mbarnard@u.washington.edu.